"Every good and perfect gift is from above, coming down from the Father of Heavenly lights..."
Sunday, July 18, 2010
Friday, July 16, 2010
The Vest
I was so excited when it showed up today. Below is the first test try with him. He has no clue what is about to happen.
The VEST did work. It came out his nose, out his lungs and out his fanny (yuck) Please keep him in your prayers as we are worn out from the constant illness with him. It is hard on Nicholas and hard on the rest of us. Pray this works and that the Lord will put His healing hand on our little man...thank you.
Wednesday, July 14, 2010
And the Heavens will rejoice....



Wednesday, June 23, 2010
Tuesday, June 22, 2010
Nicholas coloring
Nicholas' vision therapist has started to introduce crayons to Nicholas. She is working on Nicholas being able to grasp items and see what he can do when holding them. Below is a short video of Nicholas in his stander, holding a crayon while his therapists helps him to color. He really loved it and actually visually focused on the light and colors. She uses a light box to help bring out the colors for Nicholas.
Sunday, June 20, 2010
Fun, Food, Friends and......FLYING!
So Saturday Todd invited us and other friends over to the airport for a picnic, flying time and birthday celebration (it was Cheryl's birthday) On the drive over there, Steve and Megan were rushing me to "hurry up". Little Stephen and I (Stephen is a land lover like his mommy) were still pondering if we would do the Trike.
We get there and I see the Trike. NO WAY! No way was I going to go up in that!!! Below is a picture of it.
Thank you Todd and Cheryl for giving us that day, that gift. We had the best time ever and will never forget it. Oh...and yes, I am ready to do it again!!!! Bring it on baby!
Wednesday, May 19, 2010
Superman comes home!

The picture below was right after surgery when he was in recovery. Not on oxygen (yet anyway) His heart rate was at 59. His normal level is 110. I freaked out! They said it was that way during the whole surgery. They were a bit concerned. I on the other hand was a lot concerned. All I kept remembering was when he coded. 59 is NOT a good heart rate.
It got better the next day so it must have been the combination of meds.

Nicholas' new scar. It starts at the bottom of his heart scar and down to his belly button.


Thursday, May 13, 2010
Day 3
Today has been rough. You are in so much pain. Sometimes it is so bad you just blank out. You get this blank look in your eyes and it scares me. You are reverting back to when you coded. Your muscles are so tight and won't relax. I know this is how your brain responds and it saddens me. It is so hard for mommy and daddy to see you like this. I have cried so much today, praying the Lord would take away your pain.
They started you on antibiotics today because you have "wet lungs" and some cloudy areas. Hopefully we can stop anything before it gets too bad.
Sleep well my baby. Mommy is always praying for you. Tomorrow will be better and soon we will bring you home again.
I love you sweet baby boy. You will always be my little hero.
Mommy