Hi! My name is Nicholas James. I was born on September 15th 2006 weighing in at a big 4.7 pds. I was quite a surprise for my mommy and daddy but a great one! I was born with Down syndrome and a heart defect. Mommy and daddy don't care about the Down syndrome. They say it is just a word and they love me for how God made me-perfect in His image.
On April 26th I went in to Brenner Children's hospital to have my heart repaired. I have CAVC or Complete Atrioventricular Canal Defect and Tetrology of Fallot. The surgery went really well but a week later things started changing. My lungs were filling up with fluid and started collapsing. On May 4th, I went into cardiac arrest. I had a hard time making it but thanks to the Lord and my wonderful friends at Brenner I did make it. I was without oxygen for a while so I suffered some brain injury. I stayed on life support for one week and then was able to come off. Neurology said due to my brain injury that I would never breathe, eat, laugh, cry, walk or any of those things. It wasn't humanly possible but we know that ALL things are possible through Jesus Christ!! Today I am 20 months old weighing in at 20 pounds. I am breathing on my own, trying real hard to hold my head up, I cry when I hurt and when I want to be held (and when I take a bath-I don't like those). My wonderful therapists say I am close to having a swallow test done so I can hopefuly eat soon. I have a long road ahead of me but I rely on Jesus for my strength-He will guide me through all of my journeys. My mommy, daddy, and two brothers and sister love me a whole lot and will never give up Hope for me. Mom says I am alive therefore there is always hope-Hope through Jesus Christ who loves me and gives me strength. Please continue to pray for me as I continue to progress. Thank you for all of your love and support.
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